Wednesday, May 21, 2014

Day + 18 Not so good news Please send More Prayers!!!!

I have debated whether to even write this post.  I feel like people are getting sick of me asking for prayers and fasting.  But I feel desperate and in need of another miracle.  Michalla is still not breathing well and her fevers won't go away.  She is on several antibiotics that are treating the handful of infections she has.  Over the last week Michalla's brain has been acting weird.  You know after you get your wisdom teeth out and you are loopy and it is funny for a while.  Well, Michalla is confused all the time and keeps pulling out her lines. She is with it kind of  but not really.  They have taken her off all her nausea meds that could be causing it (like Benadryl, Phenagren, Atavan) and have way reduced her pain meds to see if it would help but it keeps getting worse.

Today she had a cat scan on her chest and sinus area. They discovered she has fungus growing in her lungs.  When the doc came in to deliver the news it sounded like a death sentence.  I was told it was very very hard to get rid of and treat.  I left the room and said to the nurse "It sounded like I just got delivered a death sentence" thinking she would reassure me and tell me they have medicine and that they treat this all the time etc.  Instead she just started crying and said "It's very hard to treat and get rid of. "

Tomorrow morning Michalla will have an mri on her brain and some ultra sounds to determine the extent of the fungus infection.

A specialist just came in the room from infectious disease.  She has been talking to me for the last 30 minutes about the seriousness of this.  They believe she also has fungus in the brain and that is what is causing her to be so confused.  I asked her point blank if Michalla was going to die and all she said was "this is very serious".  Nothing will kill the fungus other than her own immune system so getting counts fast is critical.  All this medicine they are putting her on is only to keep it at bay.  We are basically playing a game of can Michalla's immune system build up faster than the fungus can kill her.

The MRI tomorrow will be very telling as will the next week.  The doc told me the next week is very crucial as to whether Michalla can beat this.  The very best case is we get it under control and spend the next several months treating it. I don't even want to think about he worst case.  I feel so helpless watching her and trying to help her.  She is still throwing up and peeing blood.  She is so swollen and retaining so much fluid that she can't even lift her own legs into bed.  I have to lift them for her.  Her head hurts as do her lungs and chest. She still can't drink or eat so trying to get meds down is an all day affair.  With her broviac being removed because of infection getting iv meds have been a challenge too.

I am sorry I beg for help all the time but please please we need a miracle.  I know the Lord is in charge of Michalla's life but the day to day is so hard.  Sometimes it feels like there is never going to
be an end it sight.

  PhotoMichalla getting CAT scan.

Love to you all.

13 comments:

  1. Love you. We are praying for you.

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  2. Sending you lots of love and prayers <3

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  3. My heart is breaking. I love her so much and will continue to pray and will fast for her and you tomorrow. I am so sorry for all you have to go through, it is unbearable.

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  4. We are sending lots of love and prayers.

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  5. We are so sorry to hear this. Our family's thoughts and prayers are always with Michalla and your family

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  7. I don't know you but I want you to know that I am praying for you, your family, and your daughter. I don't know completely why the Lord asks us to go through such heart breaking things with our children, but I know with Him we can get through it. From one cancer mom to another: you are loved.

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  8. We are continuing to pray and fast. Love you guys ...

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  9. You should never feel bad about asking for prayers! I have been praying for your family and I will continue!

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  10. Michalla is so special to Lilly. This breaks my heart. We will pray hard.

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  11. Dearest Michalla and family, We love you so much!! We are praying for you always, and think about you non-stop. We are with you in spirit for sure. We are here and available for you. Give Michalla a big hug!!! Much love, President and Sister Cornelius

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  12. Dear Cousin,

    I just read your post and feel so grateful for technology that allows us to feel closer to family even though miles and time keep us apart. I was reflecting on one of the few times I spent with you and your family when we were kids at , your home in Brigham City. It is amazing I am almost 50 years old now and we have grown kids ourselves. I am so humbled by your post and my prayers are added with the many others for Michalla's recovery. None of us know our Father's will but I know he does hear and answer prayers. Hold to the faith that keeps us moving forward even through our darkest hours. Trust Him that has carried this pain and suffering already. I love you and your dear family. I think of your dad often and know he watches and prays for us from beyond the veil. With love, Helen

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  13. Michalla was a student of mine at the Forum. She is full of drive and has such a strong spirit about her. Michalla will be in my prayers along with her family during this difficult time.
    Love, Kassy

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