Wednesday, February 26, 2014

Power Puff Girl

What is She allergic to?! AUGG...There is ALWAYS something! Here is a progression over the past 2 days.  We took the first picture because her face looked so puffy, little did we know that would be the good "Before" picture as her swelling as gotten progressively worse.  Michalla can barely see.  She has a new appreciation for her eye sight.  Michalla was supposed to be home for a week to have a break. Well she did have an ok Sunday.  Spent the entire day at Primaries on Monday having a bone marrow sample taken and a spinal tap done ( chemo inserted into her spine).  Spent Monday night crying in pain because her back hurt so bad. Spent Tuesday still with back  pain and added headaches and more and more FACE SWELLING!  So much for a relaxing week home getting a break before it all starts again.

Here she sits back in the hospital as they try to figure out what is wrong.  We have tried Benadryl, Hydracortazone, Claritin, and 2 kinds or steroids.  The list on at home meds went from 15 to 20. Along with a shot and 3 iv injections.  I don't know why I went into Accounting in college. I should have went to Nursing school. :) 

Please pray that they can figure out what is wrong and she can go home tomorrow or Friday and have a couple days home before we start the next round of chemo on Monday.

Michalla is so brave. I am so proud of her that through all this she has been able to make some jokes and we have laughed about how she looks.  I would post some of the jokes here but they are not politically correct at all.  (That's what makes them so funny).  She has had all the nurses laughing at her as she makes jokes about her appearance with everyone that sees her.  She is such a good example to me as I would not have the courage to post a picture of myself looking like this.  Wow.  She is amazing.

Sunday, February 23, 2014

Too cool for cancer

Faith helped me decide what to call this post. We are definitely too cool for cancer!

Welcoming Home
The cute balloons were Faith's idea!

Coming home for a week sure does take a lot... Too many meds!

I'm Too Sexy For My Hair!

I got to visit with this beautiful lady today. I love you Nanette!

Saturday, February 22, 2014

I finally get to go home!

 Megan and Justin brought the girls up for a visit even though I am going home today. It was so fun to see them but eventually they got bored (c'mon I've been here for weeks there's nothing boring about this place you bunch of babies...) JUST KIDDING. I am SO excited to go home for a week-ish! Also thank you to Megan and Justin for helping me pack everything up. You tend to collect a lot while you live here. AND  a big thank you for all the meals for my family, helping clean, giving rides, etc. I am so lucky to have such wonderful family, neighbors, and friends!

Friday, February 21, 2014

Penny Wars!

Sorry it' blurry but it's too cute not to put on!

At Cambri and Faith's school they are doing something called Penny Wars. They chose me as one of  the people to collect the pennies for! They are so cute and thoughtful. If you want you can donate pennies to my house for them to collect!


I counted.. over 30 bruises between the two legs. And I don't even know how I got any of them!

Thursday, February 20, 2014

Lilly and Me.

Lilly can't come out of her room right now so I came to her and we communicated through writing backwards and drawing pictures. Please still pray for her!
You've got a friend in me!
Happy late V-Day from granny B, niki ... and friends! Love ya!

McCoy and Cody.

These adorable little boys shaved their heads for me and were so proud to show me on Skype! I miss them like cray cray. I love you silly gooses!

Just chillin like a villain.

The P.T. let me borrow this bike so I don't go crazy being stuck in this room..
Going on week 5..... Get me out of here!

Sunday, February 16, 2014

Mom's perspective of the bald beautiful head.

Wow...what a week it has been.  All week we have been fighting keeping the hair in just a little longer with lots of hair spray and gel.  For days there have been hair all over pillowcase and sheets and clothes.  Michalla could just pull it out by the handfuls.  After much anticipation (sometimes the wait and anxiety  are worse than the actual experience of it) we finally decided that Saturday would be the day.  She wasn't exactly sure who she wanted to have shave her head.  West (the husband of one of my best friends, Wendy) asked Michalla if she would shave his head.  They were coming up on Saturday so West could do Michalla's nails.  Michalla decided to just have West do it.  Since we didn't have any hair cutting capes they both donned hospital gowns and she shaved his head first.  She had never shaved a head before...let alone a black man from Guana's head.  That part was fun. Then the hard part started.

Michalla didn't want to be known as just another bald kid on the 4th floor (most kids here have no hair thanks to chemo).  She was getting used to all the attention that the colorful hair brought. It was fun to stand out.  Not to mention what girl wants to be bald!  There were some tears, from both her and me.  I asked her if she wanted me to say a prayer before he started.  She did.  I said a prayer that the comforter would be with her and that she would be strong and know that beauty comes from inside etc. etc.  It was nothing spectacular.  After the prayer, I held her hand and West started in.  The whole time he was shaving it, she was extremely calm.  It was 180 degree difference from the last time she had to shave her head.  The last time, she wouldn't look in the mirror for 2 weeks and she didn't let any nurses or doctors see her, let alone visitors.  She was also crying uncontrollably. This time, as you can see, she allowed me to take pictures and she posted them!!!! I am so proud of her.  She isn't the same girl she was 18 months ago.  She is so much more mature and strong. What a great example to all those around her.

She still doesn't like to look in the mirror and she tells me she looks like a boy.  She is way too pretty to be a boy (no offense, all you males out there.)  She has such a great face and head for being bald. It was also fun that she has a picture that Russ Fullen sent of Nanette with her cute bald head.  He told Michalla that now he has 2 beautiful bald women in his life. (Love those Fullens so much) .

Michalla saved to have her nails done until after the shaving "as a reward" as she put it.  While West did her nails, Wendy and I rubbed her legs and feet.  She fell asleep about 1/2 way through.  It was so adorable and sweet that here this princess was sound asleep while those that love her took care of her and served her.  In this picture, Michalla is sound asleep.

Had the privilege of attending sacrament meeting up here again today.  They had 2 girls play the violin and someone on the piano play If You Could Hie To Kolob.  About 1/2 the audience was crying.  There is something about this place that allows the spirit to be felt so strongly.  It was really touching. Ever since my dad's funeral that has been my favorite song and has a special place in my heart. The sacrament was brought to Michalla again and the Cornelius came to visit.  It is so neat that they take to time to personally visit Michalla each week when I know they are both very busy people.

I want to thank again (although I don't feel like words are ever enough) everyone for their love and support.  We feel the prayers and couldn't make it through without all the Christ like service that is given to Michalla, Me and the family.  From rides, to meals, to visits, to text messages etc.  I have the best support system anyone could ask for!!!!  I love you all. 
Shaving Day.

That dreadful day has finally come. I shaved my head. Well, technically West shaved my head and I shaved his! It was still hard even the second time around. I was coming to love my punk rock hair. Oh well, now I will rock being a baldy! AGAIN.

Logan was getting a little bored.

My poor hair. Rainbow and all.

And there she goes.

Two baldys. Good thing I don't have a beard!

My brother is doing his eagle project with helping people become aware of being a bone marrow donor. It's super easy! He will be having a drive at the church in a couple months so please wait and come support him then! We will keep you posted!
What doesn't kill you makes you stronger!
Logan was willing to give a sample of his blood to help with genetic testing and deeper research for cancer. Thanks Logan!

we are family!