Monday, May 26, 2014

Another update. More of the same.

A little bit of a rough night.  Any progress we made getting off the cpap was erased.  Her breathing is worse today.  Dr. Pulsiver informed me this morning that Michalla has Pneumonia.  He said this about what she has in her lungs.  "It comes on very very fast but is very very slow to get rid of".  He said it will take months for her lungs to be better. :(

The throwing up is still bad.  It is crazy that she can throw up so often without eating or drinking anything.  She keeps asking for even just a lick of an otter pop or some water.  Right now they are only letting her have ice chips.

Still a lot of fluid coming off her lungs from the chest tube.  Fevers are still hovering around 100 to 101 with Tylenol.

Of course there is always something going on in the room.  From labs to xrays to respiratory therapists to infectious disease docs to bone marrow docs to icu docs.  She is being tested and examined about every 1/2 hour to hour. In between docs, she is throwing up.   Poor girl can 't get any rest.

As I go upstairs to the ICU unit on the 4th floor (we are currently on the 2nd floor) it feels like such paradise compared to the ICU.  I joked with a nurse that ICU was hell and coming up here was like entering the celestial kingdom. 

It is funny how perspective can change how you look at things.  Before we came down here I was counting the days until we could go home.  After 1 month in that little room, it seemed like there could be nothing worse.  Now, I am counting down the days until we can go back upstairs.  That will be heaven :).  We have been in the ICU so long that the nurses feel like family and when you enter the unit it feels like you are going home.  It really makes me appreciate the love and kindness we feel from everyone that takes care of Michalla.

5 comments:

  1. Michalla is in our thoughts and prayers for a complete healing. She is a fighter! God bless her.

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  2. I have been thinking about Michalla every single day. I can't imagine the pain she experiences on a minute to minute basis and it makes my heart break for her. I also can't imagine how it feels to be her family and to watch her fight every day. I wish there was more I could do than pray. I put her name on the prayer roll in the Cardston, Alberta temple and will on the Nauvoo temple as well. She is in every prayer of ours, and the focus of our fasts. What a strong girl. God bless you all!

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  3. We love you so much! We always include Michalla and your family in every prayer. Ellie and Tommy are so worried too and I let them see pictures of Michalla when you post them so they can remember who they are praying for. Yesterday, while reading your post with them, Tommy said so sincerely, "I love Michalla." We are so grateful that you keep us updated, I think Mike and I stalk your blog, we are anxious to know how things are. Know we think and pray for you all day! -Kendra

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  4. We are in constant communication with Clint and your blog. Thank you for taking the time to update everyone. I know you have a lot on your plate so it is very much appreciated. Our hearts and prays go out to Michalla as we ask for miracles and healing. I know this isn't easy on her or her family. If you need any help, we are only a phone call away. Love to all of you!

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  5. Keep at it! She will make it. Just get through today and don't worry about tomorrow, it will take care of itself. Praying for you all from Saipan. - Kaitlyn's dad.

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